Rare at Sea: Cruise offers connection, support for those with rare diseases
It had been a few years since Sean Baumstark, who is living with Friedreich’s ataxia (FA), came up with the idea of a cruise for people who, like him, have a rare disease.
It wasn’t easy, coordinating it all. And it wasn’t until everyone was finally aboard, meeting up on the deck, that Baumstark could exhale.
“We were just hanging out, taking selfies, laughing, listening to music, sharing stories, and staring at the ocean,” says Baumstark, who is cohost of Two Disabled Dudes.
Rare at Sea: Cruise offers connection, support for those with rare diseases
